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I find it hard to believe your ferritin is up high enough after just 3 transfusion. Do you know what your FE level is? If it's under 1000, I don't think it's recommended to start chelation therapy, either Exjade nor Desferral. But it's been a while and I haven't kept up on the latest info on Exjade.
How low is your HGB. Even though John had SAA, he took Exjade with a HGB of 8 - 9.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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