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EXJADE at early stage
Johnie,
I was on Exjade for 13 1/2 months, good news...it worked: however, it was very hard on digestive system. You need to be proactive in your care. My ferritin count was at 1650 when I began treatment, and at one time I even higher. I am not currently on any care for iron overload. I was blessed in that I don't think I suffered any harm from the Exjade, but this treatment should not be approached lightly. Birgitta is a good source of info; she was a great help to me.
I currently have hg level of 9.2; I staying fairly stable. Thanks to all of you who have been a help along the way. I believe this forum was very instrumental in helping me learn more about MDS.
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