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Old Tue May 2, 2017, 07:46 AM
Sue&Dave Sue&Dave is offline
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Join Date: Nov 2016
Location: New York
Posts: 50
Hi Cat - so frustrating right? These are definitely questions we will be asking his doc later this month. Dave has finished his fourth round - which I guess is the protocol to determine whether the treatment is working. IMHO it has been working for him, but the BMB will tell all. Ironically his blasts never went above 6%, he just had overwhelming symptoms, which have pretty much been resolved since he started treatment. What we are seeing is that his white and thus ANC are the counts that aren't responding as well as the others. They go up around day 8-10 and then slowly slide back down the further we get away from treatment - but not down to his previous low levels. We are incredibly lucky that he has not needed any further transfusions and hope we can ride the Vidaza train for a while. I seem to recall another poster that said they have been on treatment for 8 years. Without a matched donor, we can only hope we will be as fortunate. Please keep us posted on the progress of your dad - hugs to both of you!
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