[towncarlady]

I am actually the one that raised the question...not my doctors. I am not currently seeing a hematologist. I was diagnosed in January 2008, after I pursued the reason for my constant respiratory infections and anemia. I am almost positive that I have had MDS actively since 2005. I was initially diagnosed with RARS, then identified with Trisomy 8.

it is a bit encouraging to know that you are still surviving after so many transfusions. My ferritin level is 1651; my new primary care physician at least is trying to learn. We agreed to wait on chelation at this time. I have studied about Exjade, and am concerned about complications with GI problems. What is your ferritin level? How does the treatment affect your body?
At the moment, my WBC and Platelets are low normal after being off chemo since February, 2009 (Dacogen 5 rounds).

Do you take a daily dose or only following a transfusion? I will be very cautious about further treatment under I know more.

I appreciate your help.