Hi Becky,
Yes, I took Exjade morning and evening. The important thing is to take it at least 2 hours after meal and at least 0.5 hours before meal.
We are supposed to take 20 mg/kg/day - I should take 1250 mg - but it is important to control blood counts and creatinine (kidneys) every week. After 1000 mg my WBCs decreased and I had to stop taking the drug. After a few weeks I started again with 250 mg/day and after 2 months I tried 500 mg/day. This time my WBCs are holding but the platelets are decreasing so I don't know if I can continue with this dose. I have got Desferal during 4 days in connection with transfusions since Aug 2007.
Hope you will have a good response to Exjade without adverse effects
!
Kind regards
Birgitta-A