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Hi Alyssa - So sorry to read you're not feeling well. Your symptoms sound very like mine did 4 years ago before being diagnosed with MDS and after 6 years of chronic idiopathic neutropenia and lymphopenia as well as undiagnosed hypogammaglobulinaemia. A couple of questions:
Did you actually have your B12 checked? This is not quite clear in your post.
Are your globulin levels normal (IgG, IgA, IgM)? I haven't had to have IV antibiotics since being on 4-weekly gamma globulin and I rarely get any kind of infection now. Like you I also avoid sugar, practice strict hand-washing, etc.
How is your Vitamin D?
It's also worth having your copper level checked since you have a chronically low white cell count.
Others on this forum might have suggestions for further tests. Ask your GP if you can have them done, as if you're deficient this can contribute to the symptoms you are describing.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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