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Old Thu Jul 30, 2015, 12:34 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Marlene - just posted to Tracey and will share with you what a chinese haematologist told me when I was first diagnosed with MDS, and that is to take 1000 mg Echinacea a day to boost the immune system. (He recommended against taking any chinese medicines). Maybe it could help you? St. Johns Wort is also good for your mood, as long as it doesn't clash with any other medication you might be taking.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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