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Old Wed Jul 7, 2010, 01:09 PM
tytd tytd is offline
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Join Date: Jul 2009
Location: Southeast, USA
Posts: 132
low platelets

Hello Mcgill54,
We (MDS patients) are a heterogeneous bunch and everyone's disease may progress at a different pace - I've had low platelets for going on 27 years but only started worrying about it over the past 2 years since they dropped so slowly - now in 18 to 20k range. I share your concern about Dacogen especially since I'm not a clear-cut MDS patient. Of course, I avoid aspirin or similar drugs at all costs but you need it for your heart. My hematologist likes to comfort me by telling me about his 89 year old patient who has done well with a platelet count of 15k for a year -not sure I believe him. Don't do any weightlifting and protect your head. Take care of your heart. I think the exercise is good. I hope your platelet count will stay stable or go up - it's possible. Good luck. tytd
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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