Hi mcgill54,
Since we had our latest contact I have started taking Thalidomide 50 mg/day and Prednisone 20 mg/day for my very severe fibrosis.
After 4 years of supportive therapy (my own choise) I needed blood transfusions once a week and my dysfunctional platelets could drop to 22 so I needed platelet transfusions too. Then I accepted Thalidomide and that drug has had good effect on the RBCs - I only need transfusions every third week - and on the platelets - last count 54
. Unfortunately my WBCs dropped so I have increased the Neupogen injections from 2 to 3 injections/week. No other adverse effects of Thalidomide so far.
I control my blood tests once a week because we need to know how the WBCs are doing - if they get too low I will have to reduce the Thalidomide dose. After dx my blood was tested about every 4:th week.
Kind regards
Birgitta-A