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My doctor says I've got hypocellular MDS, or perhaps it's Aplastic Anemia, as the symptoms are so similar. Bone marrow is "bone dry", not much productivity going on, and all blood counts are low. It's thought that the ATG may be more effective for PNH patients who are also being treated with Soliris. It's a complicated world out there and I'm slowly learning to navigate my way through it. I so appreciate what you, Greg, and others have learned and share on this forum.
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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