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ATG is done - yay! Now we are dealing with the aftermath. Really rotten headaches, high blood pressure, low oxygen, one bout of throwing up, fevers. There is probably more but that's all that I remember. My treatments started late in the afternoon because of testing, receiving transfusions, etc. So I felt the side effects into the early morning. Oh, yeah, I forgot the Lasix for water retention. Now that is fun in the wee hours of the morning! Boredom hasn't been much of a problem because most of the time I felt too rotten to be bored. But it's behind me now, I have a room to myself, the sun is shining and my 4 day vacation at the hospital may end on day 8! Glad I wasn't expecting this to e a cakewalk.
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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