|
Hi David,
Congratulations on your AA being stable.
I can shed a little light on Promacta. My husband was in clinical trials for MDS at The NIH starting back in 2009. Nothing had worked after having over 125 blood/platelet transfusions. Since NIH had such success with Promacta in AA patients they decided to do a trial on MDS patients. Don was the first in that clinical trial. Long story short, they started him in the spring of 2011 and stopped in August 2012 when his platelets hit 100,000. He has been in what you could call remission ever since. His reds are pretty much normal, his whites are normal and his platelets hover around 80,000 to 100,000 give or take. Nothing short of a Miracle. Last check was this month. It was very well tolerated. Please keep us posted if they do try Promacta.
All the best,
Sally
|