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Old Tue May 22, 2012, 08:06 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Sally,

Not sure if you have ever discussed an IVC filter with Don's Dr. They are filters that break up blood clots before they get to the heart, lungs, or brain. They can be added prophylactically for people at risk for clotting and are an outpatient type procedure. Just learned about these a couple of weeks ago, but they are highly recommended by vascular surgeons for people at risk of clots.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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