|
My lowest Hb was 53 but that was before I was being monitored regularly. I ended up having three units of blood every two weeks before I started the chemo. On chemo of course the blood requirement was higher.
Now that I'm having IV copper replacement I haven't had a transfusion since March 17th this year. I had been having transfusions since 2003. I have a normal Hb now and have started having blood taken off to reduce the increased iron in the liver which is caused by numerous transfusions.
Have you had a BMB?
Regards
Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
Last edited by Chirley : Thu Jul 19, 2012 at 03:08 AM.
Reason: Posted accidentally before finishing.
|