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Marlene,
thanks for your reply. I am going to discuss this with my doctor tomorrow.
Currently my platelets drop to anywhere from 10,000 to 1,000 before I get transfused. So at this time I'm not stabilizing. Usually the count is around 6 or 7 when I get the transfusion. I don't like to let it get so low as 1, because then I do have bleeding gums, much petechia and some headaches.
How many months was John into post-hi-cy when he stopped needing platelet transfusions? Did this occur before or after he became rbc transfusion free? As you can tell, I'm getting tired of waiting. But I have been seeing some small improvements in length of time between transfusions.
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Maggie (56 year old woman) diagnosed with severe AA in January 2006. Treated May 2006 with High Dose Cytoxin, Nov.2008 had BMT, both at John Hopkins. WBC & Platelets now normal, RBC near normal, still high ferritin level.
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