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Old Wed Jan 9, 2008, 09:54 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
That is low...

....and I do understand how you feel. Your recovery is pretty much on you because they really have little to offer other than "support" with growth factors, blood product, etc....The body has an amazing ability to heal. The challenge is to figure out what it is you need to restore your health. We have found that they have little to offer in that aspect of your recovery.

So one thing comes to mind......Have you tried stopping the Exjade for a while to see if it may be suppressing your white count? It's worth testing this out if you haven't already.

BTW...John started a progam last month of acupuncture and TCM herbs. We know he had some ongoing inflammation as well as some hormone issues. He's had improvements in his energy level and the inflammation is down. At some point we'll recheck the testosterone levels and see if he needs to do hormone replacement therapy.

Take care and let us know how your appointment went.

Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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