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I really think the iron messes with the entire endocrine system. I understand the pancreas is more sensitive. Even though they say it takes 10 years before you see damage, I think that applies to those with gradual accumulation versus the major amounts accumulated via transfusions.
I know that the more iron John got rid off, the better everything worked.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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