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Old Tue Sep 6, 2016, 03:57 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Jen. There used to be more meetings held by NORD, but I think that they now do fewer meetings targeted at more specific regions of the country. So far I have been the only person at the meetings I attended that has had a transplant. Not all doctors see a transplant as a good option unless your symptoms are very severe. One young guy in L.A.; who also had AA, was going to have a transplant. So has that option been discussed w/ your doctor? Younger is better in such instances because your body can recover more easily from everything that is involved. I was just wondering.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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