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Old Wed Aug 15, 2012, 09:23 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Your case is confusing enough that I would suggest that you see a good hematologist at a center of excellence or teaching hospital.

There is a rare blood condition where about half of the patients have autoimmune diseases such as Hashimoto's and Sjogren's that you mentioned. I am not going to give it a name here, but a good hematologist can identify and treat it.

I know the frustrations you are having, but getting a proper diagnosis will put you at ease and on the way to proper health.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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