Here is overall MDS survival data from the VA.
Outcome of patients with myelodysplastic syndromes in the Veterans Administration population.
RESULTS:A total of 2242 MDS cases were registered during the period analyzed. The median overall survival (OS) was 2.1 years, but varied by French-American-British category. Median OS for patients with RA, RARS and RAEB was 3.4, 4.9, and 0.7 years, respectively.
The type of MDS makes a difference in OS.
I did go to the VA for an opinion on my MDS. Bottom line they told me they have one transplant center with a long waiting list and I would probably be dead before my number for a transplant came up. Fortunately I have other insurance.