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Old Sat Jun 7, 2014, 02:48 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
RA

Hi writer,
As far as I understand you have RA (Refractory Anemia) that accounts for 20% to 30% of all patients with MDS. http://www.cancer.gov/cancertopics/p...essional/page2

Since your erythropoetin is high EPO drugs won't have any effect as you wrote.

How high is your ferritin value? Most doctors start to give chelating drugs like Exjade when the ferritin level is more than 1000 - this is very important if the patient is going to get a SCT.

Can't you go to one of the Centers of Excellence in Florida (Mayo or Moffitt) and discuss with a real specialist in SCT?
http://www.marrowforums.org/resource...ransplantation
Kind regards
Birgitta-A
75 yo, cx MDS Interm-1 2006. Now taking Revlimid with positive effect.
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