Recently Diagnosed with PNH
Hello, just recently diagnosed with PNH as of 4 hours ago from this post. I read the forums a little bit before I had the test and just received the results. I'm 28 years old my original diagnosis was an Iron deficiency anemia, in december 2017, my HgB was at a 7.6 at the lowest and is currently at a 9.8 but it seems to have capped out.
I thought I had PNH through all my research and I've been told the the online data about PNH is out dated and now with treatment or a BMT it is possible to live a "normal" life according to my doctor. I'm not sure if that is just BS to make me feel better or if it really is possible.
Anyway I thought I would just say hello and introduce myself. Any questions feel free to ask or words of encouragement would be appreciated.