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Hey, I am sure I have spoken to you before. I'm sorry I can't remember your name. Please excuse my ignorance. You are in Qld.
Thanks heaps for the encouragement. I am sure when the time comes all will work out. Just hope my head can find another perspective. I really appreciate you listening to me. I've talked to some of my family and some friends, and sometimes don't feel like they really LISTEN to how I'm feeling. But I guess we are all only human. I guess because I'm doing so much better out of hospital they think it's all over. And I'm sick of trying to explain my agony of the uncertainty of the disease.
Anyway, I will stop now. Thanks so much for being there. Never felt so lonely as I do at the moment. But your replies help. Jules xo
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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