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Old Mon Sep 5, 2011, 03:07 PM
Karenish Karenish is offline
Join Date: Feb 2011
Location: Stafford, United Kingdom
Posts: 100
Same here, I had ATG Rabbit.... just awaiting results from a recent bone marrow biopsy to see if anything has had an affect in the marrow. some people do respond after the initial 6 months, one person I know did not respond until month ten and then was transfusion independent within three months. Unfortunately this disease is totally unique for each and everyone of us. Your child is a bit like me, I am producing nutrafils and white cells, enough to keep me infection free, but not enough platelets or haemoglobin.
I think dependent on the bone marrow results, if there is no activity they may well offer a second dose of the rabbit, perhaps your daughter should be checked for the same and have a second dose of the horse? try to stay positive, there are lots more treatment options out there. xx
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