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I have been inactive for awhile. Just busy, enjoying life! I am currently on my 58th cycle of Vidaza. It took about 12 cycles before I was transfusion independent. I have been told that most doctors would have discontinued treatment, but my doctor stuck with me. His theory is that it has created a graft vs. leukemia effect. he briefly explained that the Vidaza has programed my donor T-cells to fight the MDS. I'm trying to find more information on this.
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58  , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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