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Old Fri May 6, 2011, 02:31 PM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 453
Laura,

You've been on my mind a lot lately. Good to hear from you although the news is not so good. I was thinking the same thing as Melissa about the fatigue related to your body's constant fight. I think (in my completely unprofessional opinion) in your position, that everything going on is likely to be transplant related. I can't remember who told me this but when I was looking at different transplant centers, one of the reasons Hutchinson in Seattle was so highly recommended is that they have a lot of specialists with dual specialities, transplant + GI, for example, or transplant plus gyn or transplant plus dentistry. Since I decided to stay close to home at Hopkins, I never found out if this is correct info but it would be worth a call to them. They're very good about phone consults to determine if it's worth your whike to make the journey. Please keep us posted. Sending healing thoughts your way.

Hugs, Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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