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Beginning
Hi there:
My husband, 76 y.o. was diagnosed in Jan. with MDS-Unclassified. He began with low platelets (35) in November and a low white count, which proceeded to fall quite a bit. However, his platelets came up. He had a bout of what we think were cluster headaches for 3 months.....they became debilitating. He got over them with Verapamil. That has been his only true issue even though his white count in April was 1.2 with neutrophils of 0.2. A little fatigue. He received 3 injections of Neupogen back in Feb.
This month his white count came back up to 2.7, his neut. are 0.3, but his platelets are 138. His H&H is normal. He has not had anemia.
He has swollen lymph nodes which were negative on biopsy but are not getting smaller, in 4 months.
So, we don't know what will happen. He is quite active and we feel pretty fortunate. I would love to hear from others who have similar scenarios. It is a little lonely not knowing anyone who even knows what MDS is. Thank you.
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