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Old Tue Nov 5, 2019, 09:43 PM
quantpsyc quantpsyc is offline
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Join Date: May 2017
Location: Leland, NC
Posts: 24
Great news Rarity. Ed is almost 6 months out and struggling with unexpained thrombocytopenia but still thankful for each day! He is my hero!
Keep up the good fight! Kathleen
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Kathleen, adoring wife of Ed 67 yo, Dx April 2017 MDS RAEB2, no chromosomal mutations, as of August 2017 only supplement therapy, living and loving each day.
October 2018 started Decitabine, "exceptional response", MUD HSCT May 7, 2019.
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