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Old Wed Aug 18, 2010, 12:43 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi,

I'm so sorry to read of Jorge's relapse. Did his doctors try to salvage him with Cyclosporine alone at first?

I've read that people with good responses the first time around usually have good responses again the second time. I know that does not help with the discouragement of having to go through this process again, but it least it can give you encouragement that he will get stronger again.

How long was your husband on Cyclosporine? How quickly did he taper? Hopefully, the doctors will learn from this experience and will adjust things so that he will be one of the success stories of the future Stay positive!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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