Dear Cheri, Birgetta and Chirley
Thank you all for your replies and suggestions. I am going back again to the doc tomorrow and we need to discuss somethings. I am going to check into the clinical trials here in Ga. Atlanta is about 2 hrs away and I should be able to get help there. I've got more questions for my doc and now feel there is something else out there to help with the suggestions you all gave. Its too easy to get caught up in all this drama and feel helpless when you are only listening to one side of it. I needed the extra push with info and the trials ( I do not know why he swayed me away from them) but I feel better - thank you again.
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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