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Hi Ellen, sorry to hear you're not well.
Sounds like the pain is right where the stomach sits. Im surprised they havent ordered a gastroscopy.
I get a little discomfort both right and left upper quadrants but the right is from an enlarged liver and the left is from an enlarged spleen. These would have shown up on a CT scan.
Hope they work out what it is soon.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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