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Change in diagnosis
Now my husband has the diagnosis of post essential thrombocytosis/myelofibrosis. This occurred as a result of being assessed by the University of Michigan bone marrow transplant team. We asked what the prognosis was with the BMT. They said he would have a 34% chance of surviving two years after BMT. We asked what his prognosis was without the BMT. They said six months to two years, maybe three. Our local oncologist said the same thing.
I have received the final report from U of M from our family doctor, who has been our doctor for over 20 years. I think the prognosis comes from Rick's myelofibrosis (which is a form of bone marrow cancer as well) combined with his significant comorbidities. He suffers from malnutrition, cardiomyopathy, and suspected IBS. So there you have it. However, other than the fatigue and low blood cell counts, he is doing pretty. Quality of life is fairly good. We have moved in with my daughter and are currently in the process of selling our house.
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