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Old Sun Oct 11, 2009, 10:21 AM
Jill2008 Jill2008 is offline
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Join Date: Jul 2008
Location: Redding, CA
Posts: 84
Dear Georges,
You are not alone. You're in the right place to get all the information and support you need. I was told by my Family Doctor that I could have one of a number of things. At one end was a vitamin B12 deficiency and at the other was Leukemia. It was four days before Christmas and I remember crying all the way home in the car. All I could think about was if I would ever see my youngest of three daughters graduate from high school or if I would get to see my first grandchild. This by the way, has come true. She was born on August 31st and I was there for her arrival.
It took 6 months of seeing a local hematologist and finally a referal to Stanford to be diagnosed with MDS. My husband and I both held it together until we hit the parking lot. I became obsessed with trying to figure out what caused me to get this disease so young. Was it my job working as a dental assistant for nearly twenty years, the pesticides used on our food, the environment or just a stroke of bad luck? For a short period of time, I had to be prescribed medication for anxiety and insomnia.
The AA&MDS International Foundation has two great, easy to understand booklets: Your Guide to Understanding MDS and What To Expect From Treatment. Stanford also provided us with a great book 100 Questions and Answers About Myelodysplastic Syndromes, which is available online.
Your in my thoughts and prayers.
Jill
__________________
Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58 , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)

Last edited by Jill2008 : Sun Oct 11, 2009 at 01:47 PM. Reason: add info
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