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Old Sat Jan 17, 2015, 10:13 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
it is very hard to say what is going on with your marrow without more information. generally mds requires a diagnosis of dysplasia in ten percent or more of any blood cell line, some form of chromosome damage identified, or an increase in blast cells in the marrow or blood.

aa is al little harder to diagnose in the absence of severely low blood counts. some people live outside the range of normal counts for years and this is normal for them. i am not a doctor and can't give an answer, but you may be in a prolonged watch and wait period. it also might be worth while to go to a center of excellence for a second opinion.

one other option might be to check vitamin and mineral levels to see if you are experiencing any obvious deficiencies.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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