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Old Sat Nov 5, 2016, 12:53 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Michelle,

I would highly recommend seeing Dr Ron Paquette at UCLA. He is excellent. He will want to see all or your results and your recent bone marrow slides. So, start requesting those from your current doctor now.

I also have very high B12. I am not sure what to make of that. Let me know if you learn anything!

If you ever had mono as a kid, you will test positive for EBV now and forever. If you don't remember having mono as a kid, you may have had just a really mild case. So no need to panic about that result!

Good luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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