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I'm going to jump into the ATG Blues discussion. Mine was 2 weeks ago, so I have a long way to go until I feel better. Knowing that doesn't always mean much, though. Right now I don't really care much what the counts are (low), I'd just like to be able to walk across the room without being out of breath. Suddenly, the days prior to ATG look pretty good - a new standard for "normal" has been set! But one day at a time we can get through this and one day we'll be on the other side of the "River of Hope".
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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