Quote:
Originally Posted by JodyW
Where does everyone on these forum find so much info. Do you just surf the internet ?
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You can find lots of reference information on the Internet, but it's not all useful and you have to watch out for commercial sites that are interested in selling to you rather than informing you. The major drug information sites are generally pretty good. Some sites, such as
PubMed.gov and
ClinicalTrials.gov are excellent resources but are full of medical language that's often hard for laypeople to understand. Over time we learn to understand more of it.
We get excellent information from the
Aplastic Anemia & MDS International Foundation, whose focus is specific to the diseases we're battling.
Relying on each other also helps us sift out the information we're looking for. If one of us posts something we learned from our doctor or another source, we all learn it. We don't know all of the answers, and we're not qualified to act as doctors for each other, but as well-informed patients and family members we know the right questions to ask!