Quote:
Originally Posted by lindy
Congrats Lynn, great to hear you are doing well. 
Just wondering what's this pill that is helping you?
Could other MDS patients benefit from it? |
Hi Lindy,
I take Valproic Acid, it is a common treatment for low rbc's/hgl. It is my understanding that about 1/3 of patients that try it, respond to it but the median time line is about 5 months for a response. It typically just brings up your hemoglobins high enough to not need transfusions during the time a patient responds.
I have been very fortunate in my response, a) it has lifted my counts into the normal range, b) it has lasted for so long and c) I require a very low dose to maintain the results.
It is also my understanding that VPA combined with Vidaza is showing some good promise as a treatment.
Take care,
Lynn
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Lynn: 49 yrs young, Female. Dx April 2008, MDS RCMD with Myelofibrosis Gr. 3/4. Was blood transfusion dependant. Treatment: Started Valproic Acid July 11, 2008, last tx July 17, 2008. 3 yrs tx independant, normal CBC's, Life is Good.
