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Hi Annm,
I am relatively new to all this too, got diagnosed end of July. I am sure there are others on this site who know a lot more, but my experience is when I hit 8, and I usually am between 8.2-9, my dr. sends me for 2 units. I don't know how long the blood stays in your system, good question. But why go through the type and cross process again and expose yourself to the germs of the hospital, or center?
I have had 3 or 4 to date and have asked if I need to be concerned about my iron and ferritan levels, etc. and he scoffs, and says no need to worry at this point. I just read in an alert I got from MDS Beacon, that ferritan levels affect the outcome of BMT, which makes me curious.
donna j.
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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