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2 Years Today
It was July 17, 2008 when I got my last transfusion!!
The Valproic Acid continues to keep my hemoglobin well within the normal range of 130's. Last year we had one episode of my hem's crashing, started the VPA again and up they came. I only take one 250 mg pill a day, anymore than that and my counts go too high. If I stop the VPA, once the drugs wear out, my counts crash. My Spleen has been behaving as well.
My doc for the MDS says it is amazing and a miracle, he doesn't know why I am so lucky.
I was thinking about everyone today with this damned disease, knowing how lucky I am, as I galloped along a trail on my horse for an early morning ride. I remembered the extreme fatigue and the effort it took to just climb a few stairs.
With some luck, maybe just maybe the VPA will keep the MDS/Fibrosis in a chronic stage for a very long time.
My thoughts are with everyone, please take care.
Lynn
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