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They cut me down kind of slowly, maybe around 3 months taper. I was originally taking 2 pills a day, but that was too much I guess, then I was taking a pill a day for around 5-6 months and then a pill every other day..so on. I was wondering if they will put me back on cyclosporine to see if that helps? I guess I really can't be sure until I have the next biopsy..but I am just anxious about it and was hoping most of this was behind me!
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Erin 38, AA diagnosed Sept 2008. Atg Nov 08, relapse Nov 10. pnh 12/12. 40% pnh clone. Currently on Soliris.
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