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Hi, yes it's a simple blood test for copper and caeruloplasmin.
My last BMB in early 2011 still showed MDS (all three cell lines) even though my peripheral counts had normalised with the copper.
My new doctor seems to think it is MDS in remission whilst on copper treatments whereas my previous doctor thought of it as reversible MDS which was cured by copper treatments.
I know that my experience helped someone else because my haematologist started checking copper levels on all his haem patients and he found a couple of other people with deficiencies as well.
The only counts which remain abnormal while on intravenous copper are my platelets which are always a little low and my lymphocytes which are always very low.
I think it's becoming recognised that copper deficiency can cause a reversible MDS and most haematologists check copper levels routinely now.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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