Quote:
Originally Posted by usaf1125
I have had MDS since 2003. Have received 349 units of PRC. My iron level is off the charts, over 3000. Used to take Exjade, had to stop it upset my stomach. Not showing any reaction to the high iron level, my Doctor is not concerned about it. Every one is different. Don't know if this helps. Don't let it rule you, keep smilling, we can only hope. I'm 81 now, get 2 units every 2 to 3 weeks
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Hello usaf1125,
Your post is encouraging. My mother will most likely follow the transfusion supportive care as well. Its good to know that you are managing well even without chelation, as I am concerned that she may not be able to tolerate the chelation drugs. She has had 16 units since dx, 2 units every 3-4 weeks.Any other information you can share will be appreciated.
Many thanks.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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