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Ultomaris
Hi, unfortunately i can not answer your question. But i would like to ask you about your experience with Ultomaris. My sister may begin treatment in 2022.
How was your experience with it? how long have you been on it? is the treatment indefinite unless there is a significant change in PNH clone/symptoms? Have you noticed any side effects? Were you able to get it administered at home or did you go to a medical facility?
thank you
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JR, sister dx with AA 2010; ATG 2011; PNH clone increase in 2019[60%]; current treatment; blood thinner/Cyclo
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