The
Leukaemia Foundation of Australia offers information, support, and practical assistance to patients with leukaemias, lymphomas, myeloma, and related blood disorders. We recommend that you download their
MDS Booklet (PDF, 1.8MB) and
other educational materials. They host online discussions in an MDS section of
Talk Blood Cancer.
The
PNH Support Association of Australia (PNHSAA) offers news to the approximately 70 PNH patients in Australia. In support of these patients they are
petitioning the Australian Government to provide funding for eculizumab (trade name Soliris), already approved in many other countries for the treatment of PNH.
Feel free to share information about other resources for Australians with aplastic anaemia, MDS, or PNH.