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Old Thu May 16, 2013, 11:08 PM
NLJabbari NLJabbari is offline
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
Hi NikkiNak,

I have a couple of suggestions, you can call AAMDS.org and they might be able to give you advice on how to contact Pedi Specialist that might be able to teleconference and/or even speak to your son's Pedi Hem/Onc. I know that they have given me very helpful resources.

The other thing you might want to try is to get in touch with "Band of Mother's..." on FaceBook. They might have some suggestions as well.

https://www.facebook.com/BandOfMothe...Anemia?fref=ts
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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