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Hi Paul. We are all sorry to hear about you needing a 2nd trans, but it does happen. My experience has not been too bad, but I have some chronic GVHD which may require some IV meds. It mostly went away, but sort of came back 4 yrs later. (I just had an appt this morning.) You seem to have a good attitude which is helpful. Good luck and let us know how you are doing.
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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