View Single Post
  #3  
Old Tue Dec 19, 2017, 12:12 AM
maggiemag maggiemag is offline
Member
 
Join Date: Sep 2012
Location: Cincinnati, OH - United States
Posts: 92
Hi Ritu,

I've not heard of it before. I googled it and one site says that it is "the Rolls Royce" of supplements. Other sites referred to purtier placenta as a scam. I hate to see you taken advantage of, and who knows how much it actually did for your friend's hematological status. Truthfully, to my knowledge, the only cure for MDS is a stem cell transplant. Vitamins, supplements, and just good healthy eating can improve well being, but will not take away the disease. There are medications that have proven to add years to survival, like Vidaza and Decitabine, and there are numerous others in trials right now. We just have to hang on, utilize proven treatments for now, and try to maintain a positive attitude too! A tall order I know when your loved one is affected.

All my best,
Mags
__________________
Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
Reply With Quote