Thread: Family problem
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  #52  
Old Sat Nov 3, 2012, 09:13 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Update

It's been a while now.

My Mumhas been home for a few weeks. We are all getting into the dialysis routine.

Mum lost quite a bit of weight and dropped to 44 kgs but with adding in supplements and her increasing appetite she is now up to 45.7kg (dry weight, post dialysis).

She is slowly regaining strength and her mood and behavior is a lot better (she still has her moments). She has started doing a little cooking and has started doing her own clothes washing. Her general hygiene has returned to normal and she showers and grooms herself again.

Mum even asked Dad to take her shopping (I was worried that it would be too strenuous) and when they returned home Dad was very frustrated because every time he took his eyes off her she would disappear into a shop and he would lose her (she has always done this...some things never change).

Mum and Dad were quite frosty with each other because they disagreed about where to have lunch, what kind of shoes Mum wanted to buy etc, etc. Ahh....back to normal, 63 years of marital bickering restored yet again

Regards

Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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