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So we are past all of the conditioning, received cells on 02/26 from a generous anonymous donor. I have received a total of 3 PRBC transfusions and 4 platelet transfusions - holding steady today with 48k platelets and 8.6 HGB, ANC have come down and now are at 1172, should drop below the 1k mark today to become neutropenic. I am feeling pretty good on the scale of things, and cannot begin to tell you how wonderful the nursing and medical staff are here. These folks are the very best I could ask for.
We are working on adjusting Tacrolimus levels, I keep showing up a little high - was 18 the other day, target of 12, was 15 this morning. We think the dose is right, but that my body is just trying to catch up a little.
It has been pretty nice being able to get up and about daily to take walks and ride the stationary bike - walked almost 2 miles today.
I also wanted to express gratitude to all on this forum as I have learned from the transplant experiences of you and your loved ones, which has helped me prepare for some of the stuff that has come up so that they are seen as obstacles not road blocks.
Wishing all of you well.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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